Meet Chloe

 
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Chloe Weber developed an interest in public health and medicine after being diagnosed with Cutaneous Leishmaniasis in high school. As one of the first cases diagnosed in Costa Rica, Chloe was drawn to study Ecology and Evolutionary biology at CU Boulder where she began to understand how diseases evolve along with us and the deep connection between humans and our environment. Eventually, Chloe was drawn to Chinese medicine as a way to address public health issues. She graduated with a Masters of Oriental Medicine from Southwest Acupuncture College in Boulder and spent time studying at Heilongjiang University Hospital in Harbin, China.

After graduating, Chloe co-founded a non-profit sliding-scale walk-in Chinese herb clinic called Urban Herbs. Running her clinic Chloe was able to dive into her study of herbs and found great joy in community outreach. When Chloe’s son, Remy, was starting the journey towards diagnosis she decided to move home to New York to focus on supporting him. Chloe currently has a private practice in NYC seeing patients in Manhattan and Bellmore. Working with Remy has lead Chloe to extensively study integrative neurology and functional medicine and has motivated her to find ways to help children with neuro-developmental issues and seizures. Chloe recently launched a CBD and Chinese Herb company (Radical Roots) so that she could create a customized supplement for Remy and make sure that she was using the highest quality CBD for her patients.

 

Meet Remy

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Remy has always been magic.  As an infant he instantly calmed stressed patients waiting for treatments in Chloe’s clinic.  An easy and happy child, Remy is a joy to be around. Around 10 months old Remy was referred to early intervention because he wasn’t meeting milestones.  Early intervention then referred him to neurology and genetics. After nearly two years of testing Remy was diagnosed with an extremely rare one-nucleotide error in his gene for the syntax binding protein.  Known as STXBP1, Remy is one of around 300 people diagnosed worldwide. This disorder causes moderate to severe intellectual disability, nearly all of the children are non-verbal and many have intractable seizures, Parkinsonian-like tremors and gross and fine motor disability.  

Remy happily obliges as he does over 30 hours of therapy a week.  Leaving no stone unturned Remy and Chloe have traveled as far as Ecuador to see specialists and have gone to doctors from all fields and backgrounds.  Remy has thrived under the treatment program at The Family Hope Center (https://familyhopecenter.com) and his seizures have remained well controlled. Currently, Remy is 4 years old, he is learning how to use his speaking device, he can stand with assistance and is learning to cruise, he crawls very well, he has a few words and he continues to move in the right direction developmentally.  Remy loves his integrative preschool class and is obsessed with swings, books, water play and food. Remy’s Revenge has drastically reduced Remy’s seizures, significantly improved his sleep (to Chloe’s delight) and nearly eliminated his tremor.

Remy is an absolute inspiration to everyone he meets and will help Chloe fulfill her mission to help as many children and adults as she can.

 

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